If we choose to brush by a hard thing because we choose to believe others aren’t aware, what does that really say about us. Presume competence – do the hard, right thing.
I’m sure you’ve seen the latest incidence of unnecessary police brutality – a black healthcare professional named Charles Kinsey who was shot while on the ground with his hands up as he desperately tried to calm his autistic patient. I hope you’re outraged and appalled. And I hope you’re tired of the violence. I am.
I’m not black, but I am a brown mother of brown boys who will grow up to be brown men, and I need you to hear me when I say that I fear for their lives, not because I expect them to do something wrong that will lead to a confrontation with the police, but because I fear that you – you being someone in the general public – will perceive them as a threat where no threat exists, and will call 911 for absolutely no damn reason. If you are reading this and are…
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Can we talk about a cure?
There’s a real problem when it comes to Autism, and it’s not to be found in us autistics. It’s to be found in the focus of funding.
Time and time again I see people struggling to get diagnosed, and then struggling when there is so little real support post-diagnosis.
The vast majority of funding appears to be spent on finding a cause for Autism, and studying what it really means neurologically.
I’m not saying those things shouldn’t be funded, but that leaves a tiny percent left for actually supporting people.
I’ve recently seen a disturbing comment by a parent of an autistic child, berating an autistic adult for calling themselves autistic, “You wouldn’t call a child with cancer a cancer child!” is the argument.
I wonder if they know how hurtful and offensive that is? I wonder if they realise that they’re comparing a…
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Important – insightful
I am a white american male. I’m married to a beautiful blond-haired green-eyed woman and have two amazing blond-haired blue-eyed boys. I was a blond-haired blue-eyed child who grew up in suburban New Jersey in a solid family with a mother, a father, a brother and two dogs. I lived a life marked by opportunity and forgiveness; and while I may not have always had “much”, I have always had the benefit of the doubt. I was raised to treat everyone equally, regardless of race, or any other demographic for that matter. And while my town may have been predominantly white, I certainly didn’t grow up isolated from other races and cultures. But even with the upbringing and exposure I was blessed with, I’m probably still a racist. I don’t mean racist like a hate filled bigot who dehumanizes and devalues the lives of others based on skin color. I…
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I am sick of seeing people responding to evidence of inaccessibility with “but it wasn’t designed for you”. This argument has been used to both try and shut down calls to make inaccessible things more accessible (which is what I’ll be focusing on) and to limit access to accessible things that have been deemed unnecessary to nondisabled people (see my piece of accessibility to fresh food here for an example of that).
So the much anticipated augmented reality game Pokemon Go was released in several countries last week (though not Canada yet). It is already wildly popular and has had a noticeable impact on Nintendo stock prices.
The game–which is based on one originally released for Gameboy and which also had a television series and card game–allows smartphone users to find and catch pokemon in the real world.
Since it’s release it has been criticized for being inaccessible to many…
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TW – murder, ableism/murder-excusing.
Let’s just jump right to the video clip. Because it needs no introduction, it is just so wrong:
The speaker is Polly Tommey. Polly Tommey has a long history of bad autism advocacy. When people think of the autism parents who just do advocacy wrong, they are thinking of people like Polly Tommey. She’s been a voice in the “vaccines-cause-autism” movement for a long time. She’s worked with Andrew Wakefield (whose unethical actions in relation to disabled patients at his hospital lost him his medical license. To name one of his many failures). This in itself demonstrates bad judgement and poor reasoning. Recall that Andrew Wakfield fictionalized an account of a parent murdering her autistic child, framing it as an act of love.
But the low point of Polly Tommey’s advocacy career came when she and Andrew Wakefield “helped” a family in crisis. They were working on a reality…
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There is so much I want to say about disability and menstruation. So much that I could never fit it into a single post. I have noticed that there is very little written about disability and menstruation generally and what little there is is most often not written by disabled people. As a result a lot of it is about control and often menstrual cessation in order to make the menstruating person more convenient for a care giver. This sometimes goes so far as sterilization of the disabled person.
The dearth of material on disability and menstruation from the disabled perspective likely has a number of influences that include the fact that menstruation is still unfortunately a taboo subject generally that people are embarrassed to talk about. Add to that the very idea of disability and sexuality is also still (somehow) widely denied. Which is, I suspect why so many…
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Read the review, skip the book.
There’s a small town in Belgium named Geel (pronounced hale with a throaty, Germanic H). By 1930, a quarter of its residents were mentally ill. If you know about Geel, you know this was not because something lurked in the water or food supply. It was because for 700 years families in Geel accepted mentally ill patients, or “boarders,” to live with them in their own homes. The town got a nickname: “Paradise for the Insane.”
I’ve never been to Geel, but I recently heard about it on NPR’s Invisibilia podcast. In the episode, reporter Lulu Miller interviews Ellen Baxter, a researcher who earned a grant to live in Geel for a year. Prior to this trip, Baxter had faked her way into a mental institution, wanting to find out about the therapeutic practices used. She saw virtually none. What she did see: people watching television, looking out the…
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