Disabled? I Am Legend!

Legendary!

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whippourwill

Be the change you want to see in the world.

a diary of a mom

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{image is a photo of Steven Kurtz at work in the kitchen. He is, of course, smiling.}

Oh, hi. You’re still here! That’s awesome. I really appreciate you sticking around, especially because I have a pretty cool story to share. Well, a couple of them actually, but let’s take it one at a time, shall we?

A couple of weeks ago, a friend told me to check out a non-profit bakery called Whippourwill. Once she did, I knew I had to share their story with you.

(Ed note: Just a reminder that I don’t dosponsored postsor the like, so if I share something like this with you, Ihave no stake in it, no relationship to it, nor do Iprofit from it in any way whatsoever. Moving on.)

Two years ago, I wrote about the founding of a summer camp for autistic kids called Well-Served Tennis Academy.In that post…

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Disability, Gender, Sexuality and Hair

Little things, they really aren’t little things. They really mean a lot.

crippledscholar

When I moved from my home in Saskatchewan to Toronto to study for my Masters degree, I didn’t cut my hair. This was an act of defiance.

That may seem like an odd thing to say as a straight cisgender woman and yet it’s true.

The gendered world in which we live often says that for women to be beautiful, they should have long hair, so long hair would seem to be more of a capitulation to gender norms than a radical act. There are strong societal ties to how people view women and hair.

Long hair is feminine and beautiful whereas short hair is not, it supposedly veers into androgyny and there is a stereotype that women with short hair are lesbians. These are stereotypes that should absolutely be challenged but it is impossible to argue that society hasn’t internalized them and it changes the way people are treated.

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Dangerous Assumptions

Erin Human

Trigger Warning: This post will discuss ableism, abuse and filicide of disabled children and adults, dehumanizing language about autistic people, and harmful behavioral therapy. I’m placing a trigger warning here as a matter of courtesy to readers who have forms of PTSD that could be triggered by these topics.

I recently read a book called Ghost Boy by Martin Pistorious. This remarkably compassionate and sensitive memoir relays the story of how Pistorious fell ill with a virus at age 12, went into a kind of waking coma for a few years, and reemerged into consciousness in his mid-teens. When he awoke from that blackout state he had very little control over his body, so that he was unable to signal to anyone in any way that he was again aware, listening, and wanting to communicate.

Eventually an attentive caretaker noticed that he seemed to want to communicate and she advocated for him…

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What Is This Shit? Douchesplaining The Spectrum

Don’t be a douche.

Lemon Peel

This dude read this one book about autism and then wrote about it for the New Yorker.

The world is full of journalists. A very small number of the world’s journalists get paid actual money to write articles in which they loftily explain things which they know virtually nothing–and probably couldn’t care less–about. Some people are perfectly comfortable reading these articles. I am not one of those people, because frankly, I was done reading half-assed hot air expelled from arrogant, old, white writers’ various orifices quite a few years ago. Unfortunately more self-congratulatory pablum is birthed into cyberspace each day, and “Asphyxiation by NYT Op-Ed-Meme Avalanche” has emerged as a leading cause of death among my age demographic.

This is the point where I would make some reference to how things were “back in the day,” if that were a reference that even made sense here. But I’m not…

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