If You Like It Then You Shoulda Put a Paycheck On It: My Real Problem With The Mighty (#CrippingTheMighty)

Autistic Academic

The Mighty, a content site catering to parents and families of disabled and chronically ill people, has been criticized repeatedly in the disability community for its continuous publication of mocking, demeaning, or “inspiration porn”-y stories that are, like so many things about disability, about us without us.

This time, the outcry addressed a piece by a parent of an autistic child, called “Introducing: Meltdown Bingo.”  The piece mocked the acute distress that autistic people express during meltdowns.

The Mighty later removed the piece (a cached version is available courtesy of Un-Boxed Brain here). The site also issued an apology of sorts.

Many bloggers in the disability community have called out The Mighty both on this particular misstep and on missteps in the past.  I agree with the way in which posts like these have gone to the heart of the matter, and I see no reason to repeat their…

View original post 1,109 more words

Advertisements

phone home, part two

So very important, for every child, regardless of neurology.

a diary of a mom

{image is a photo of Brooke on Christmas morning, moments after opening her new phone, using it to take pictures of her Kai-LAN figurines.}

In August of 2014, I wrote a post responding some comments that I’d received on Facebook when I’d referred to the fact that we’d taken Katie’s phone away for three weeks. She was thirteen at the time. In that post, I’d written the following:

To those who, in a wonderfully respectful tangential conversation, expressed concern about the fact that we are not respecting her privacy because we periodically read her texts, emails, Facebook messages etc:

When Katie got the phone, we wrote up a contract detailing how it would (and would not) be used. We signed it and so did she. The understanding was that we would read her texts. We are very cognizant of and respectful of her need for and right to privacy. We are also extremely keen on…

View original post 1,400 more words

A Response to Former Special Ed Teachers Who Want to “Show Affection” to Our Adult Participants.

Really, really, really (one more time) really important.

ACAT: Ala Costa Adult Transition Program

The first thing we teach all of the adult participants in our programs is the importance of personal space. This is a concept which seems clear to me, but it is one which we get a lot of pushback from the community about all the time, particularly when it comes to former teachers and staff hugging our adult clients while they are in program. This is a recent example from an email conversation I had with a former teacher and my response to that conversation:

….” Isn’t it normal for people who have known each for years to exchange affections? I know their work is important, but so is keeping up social relations with people in our lives, past and present?…”

Everyone has a right to their own bodies, the space around their bodies, as well the thoughts, hopes and dreams which come from their bodies. We get to choose who touches…

View original post 652 more words

CAN U NOT: A Twitter Ode From Me To The Mighty

Behavior is communication – not bingo fodder, dammit

Lemon Peel

I was pretty much done with their shit. So I said so. Multiple times. On Twitter. Eventually, after they posted their nonpology, I started tagging them in my Tweets. Now they are following me on Twitter? Entertainingly, the only tweet of mine they have Liked is the one where I’m like “If constructive criticism is what you want, you can fucking have some!”…As opposed to any of the tweets I wrote that actually contained constructive criticism? Whatever.

If you’re not familiar with this context/situation concerning The Mighty that I, and many other autistics/disabled people, have been talking about the last few days, please check out the brief list of relevant links that I’ve included at the end of this post.

(For anyone wondering why this post is just a post of my own tweets: When I go on a rant on Twitter about a specific topic or issue, I often…

View original post 824 more words

Meltdown Bingo: Autistic Edition

Really helpful info, and great points about ableism.

Silence Breaking Sound

TW/Content note: Abuse of autistic people; demonstrative use of disability slur; self-injury; in-depth descriptions of being in the middle of a meltdown.

UPDATE: The article on The Mighty that led to this post has been taken down.

The Bingo Sheet meme has existed as a way for marginalized communities to catalog and make fun of the bad things they experience.  This usually takes the form of quoting common hurtful, invalidating or dismissive things they hear from other people.  For instance, there is American Racial Incident Bingo for the ways in which white people respond badly to instances of violence against people of color, and Fat Hatred Bingo for the ways the concern trolls and other people justify bias against fat people.

So, given this context, the autistic community was none too happy when an online disability publication called The Mighty published a Meltdown Bingo… as written from the perspective of a…

View original post 2,572 more words