Please do what you can, however you can, to share and support!
I found myself at my local Dunkin’ Donuts Sunday. Don’t judge. I was only getting iced coffee, I swear. OK, so I thought about getting a doughnut and eating it in the shop to hide the evidence from Veronica. But I didn’t. Besides, that’s not the point.
When I walked in the store, there was a man with (I presume) his two children. There was a boy who looked to be about Ryan’s age and a much younger daughter. The daughter flitted about, asking if she could have this doughnut or that one. She was adorable.
But my attention was focused immediately on the son, who was clearly developmentally impaired. I recognized the somewhat stilted speech. Right away, I realized what the father was doing. He was working with his son to place his order and handle the entire transaction himself.
I was glad to be the only other person…
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“…In friendship, I’ve hit the De/Fence more times than I can count. The De/Fence hides in the landscape of friendship, like a camouflage wall sticking out of the desert sand, blending in until I smack into it face first.
There’s something that happens when new friends are confronted with disability in a real-life concrete way….”
Every parent of an autistic child needs to read this. Every person who works with or knows/loves an autistic person needs to read this. Every. Single. One.
I am not going to sit here judging someone on their journey, and I am not going to tell any moms that they can’t express their woes or life challenges. Often writing down issues and sharing with others provide a vital outlet for both venting and reassurance. This is human nature, and writing this blog I am doing exactly this too.
But I have something to say and I want you to listen. I am not criticising your parenting skills, I am not sugarcoating your difficulties, I am not underestimating how difficult life often is for you. I respect your right to freedom of speech, and I don’t want you assuming that I am dictating to you how you should run your family or look after your kids. As you often rightly say, I don’t live in your house, I have no idea of your challenges. I just want you…
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Sa-sa-sa-sarcasm (and “science”) 😉
Written by: Autistic Vegan
Originally posted HERE
It seems everyone is aware of autism these days. I can’t think of anyone I have met, who has never heard of autism. Autism Speaks has made sure that we are all aware. Their latest awareness piece came in the form of an article in People magazine, proclaiming Bob and Suzanne Wright to be heroes, battling the autism epidemic. Battling. Epidemic. The hate speech never ends with Autism Speaks. It is as if they are unaware that Autistic people don’t want you to go to war with our brains. My family became aware of our own autism, right at the same time that Autism Speaks was getting off the ground, and becoming a widely known entity. So they made sure that we knew that autism was something to be afraid of. My Autistic son was 5 years old in 2009, when Autism Speaks stated, “I…
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“Special interests” or “obsessions” – people on the autism spectrum often have them. Depending on what you read and who’s writing it, this can be a bad thing (often, parents/professionals fall into this category) or a good thing (#actuallyautistic people fall into this category).
I recently read this post on Special Interests – and commented (autistikids). It struck a nerve for me because, while some autistic people might be LASER focused on a special interest – which we neurotypicals find “strange”, “weird”, “obsessive” – we neurotypicals seem to act like we don’t have them. And that, to be frank, is bullshit. (Warning: I get a little ranty-pants below)
Are you a sports fan? Do you have a favorite team? Do you watch EVERY game if you can? Do you know all the players’ names? Can you rattle off statistics?
Do you have a favorite TV show that you always turn in to and/or record to watch later? Do you know all the main characters, and possibly their family members’ names? Can you rattle off episode descriptions?
Do you have a favorite band? How many of their CD’s do you own? How many concerts have you gone to? Do you know the words to all their songs?
Do you collect anything? Do you look for that thing wherever you go? Do you remember where you got each piece?
Is there anything that, when you see, hear, etc., it fills you with a burst of “YES!” or a feeling of “Ahhhhhh”, or gives you the urge to sigh happily?
If you’ve answered “yes” to any of the above questions – congratulations – you have a “special interest”. They shouldn’t be referred to as “special” because autistic people have them or because autistic people are “special”. They’re special because of the deep feeling of joy they carry – for EVERYONE.
A few days after reading the postI mentioned above, I went to Half Price Books – and there it was. The FEELING. One of my special interests is books/reading. I knew it before, but that day I KNEW it. Later in the week I walked into the library, and there IT was again. And knowing what it was, I reveled in it. I also watch Dr. Who – a show I’ve been a fan of for THIRTY-THREE YEARS. Yep – the feeling’s there, too.
I think, in the case of “special interests”, the social “awkwardness” or “lack of social awareness” that many autistic people have allows a level of true enjoyment of an interest that we neurotypicals have squashed out of us as we mature. “You’re too old for that”, “that’s stupid”, “why are you so excited about x?”, and the list goes on. Sure, we can go full out on music/sports/TV because they are “socially acceptable”, so that’s what we non-autistic adults focus on.
But ask yourself what you might still enjoy if you let yourself. What are you glad that your kids (if you have them) love so you can vicariously swim in their joy in that thing? Then give yourself permission to take that joy and enjoy it fully yourself.
We neurotypical’s need to take our “special interest” back, and we need to let others have theirs in peace.
A whole lot of wow, food for thought (and a bit of not safe for work language 😉
While I’m on a roll, this is another thing I get confused about.
There are many, many groups dedicated to supporting parents of autistic kids. Yay for that! I like that people are looking for support, because the exchange of information in this way is how communities are made.
The only downside is that the information being provided, often from health professionals and ‘awareness’ groups, is not stuff that is really designed to respect the rights of autistics, be they children or adults. Anyone who says ‘Oh my, all I have to do is give my kid a bleach enema? Fucking sweet! Easy street!’ is deserving of a decent, um, re-educating, to put it mildly. But it’s not the crackpots and desperate nutters I’m talking about, it’s the rational, slightly freaked out parents that are the majority, and the ones I’d like to talk to.
I was a member of…
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Today I just don’t know what I’m supposed to be doing.
The movement says ‘give us your voice, because your voice is important’, then it doesn’t take it, or edits it, because there’s an agenda no matter where you look.
Can a movement represent everyone within its confines?
Can it try to express everyone’s feels?
Why yes, yes it can, but it doesn’t want to, because RIGHT.
We can bleat about functioning labels (which I agree are shit), or be ignored as an invisible disability, but then we post memes that say we’re NOT disabled, it’s a ‘diffability’. *groan*
And then there’s the memes about ‘be yourself and fuck everyone else!’. Aren’t we trying to educate everyone else? If we tell them to get fucked, I’m thinking they may just think we’re being cunts, because people who want acceptance don’t tend to tell the people they’re trying to…
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So moving. And as an NT, I must stress – WE need to exercise empathy. Seeing the surface is not seeing deep enough to understand.
I haven’t written much here lately. In part because my general brain energy has been at a low ebb, and partly because it’s gotten harder. Looking back at my older posts, sometimes I feel sad at how they now feel naive and optimistic in some ways.
My job has gotten harder. Not because of the clients, but because of the rest of the world. Parents, therapists, siblings, barriers and obstacles, institutions of thought and culture and society… And it’s much harder to write about my work when I have things to say that aren’t as positive. Sharing the good times is easy. Sharing my mistakes feels useful to myself and others. Sharing my good ideas is gratifying. Talking about the hard parts is… hard.
I know the parents of my clients love them greatly. I know these situations aren’t easy for anyone involved. But I need to write the following…
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