A whopping big yes to this!
As Amy Sequenzia so eloquently states: “ABA is not only abusive to Autistic children, it makes ableism and abuse acceptable. “Experts” want 40 hours/week of this and parents who don’t comply can lose their children. ABA creates a culture of normalized abuse.”
The following is a guest post composed of a series of writings by Bernice Olivas, who has generously agreed to share her experience. Hers is a harrowing story, but one that illustrates the dangers of demanding compliance on so many levels – and it is a story that needs to be understood.
It’s been two years since Nebraska’s Child Protection Services threatened to take away her children because she refused to place them in full-time (40 hrs/week) compliance-based training.
She and her husband were never accused of abuse or neglect, the only reason CPS was involved with her family was because her children are autistic and some…
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I had read Dressing While Disabled by JustStimming a while back, and it had nudged me into seeing how much we “able-bodied” take for granted about pretty much everything. Seriously, we do. We wake up, get out of bed (with varying degrees of ease, but it’s usually easy), shower, dress, eat, etc., without thinking about it. We just DO things as we move through our day. Because of this post, it’s something I’m now aware of – but it’s a spotty, temporary awareness, that pops in and out of consciousness based on what’s going on around me. It’s not something I’m conscious of 100% of my waking hours.
Recently, there was a reply to my reblog that added another dimension to the Dressing While Disabled post, from tpcoughlinhomespunyarns.wordpress.com:
Really great post – lots of truth!
I was ten years old when I found out I was a geek.
I’d just gotten my IQ test back and I knew I was smart. I’d also gotten the worst of my bullying then, and I knew I was a social outcast.
I didn’t know how to behave. TV had no idea what we were like, and I mostly went to smaller schools. The most famous geek on TV was Steve Urkle. I shouldn’t have to explain why I felt like that wasn’t someone I wanted to emulate.
It was roughly 1991 and we visited my aunt and uncle in Virginia. I think we were in that lovely time period that the military gives you between moves because our family was leaving Maine and going to Germany. I think we stopped in Wyoming on the way. . .
But at my Aunt and Uncle’s house was someone who was…
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Respect is really the only way.
Most people don’t know that non verbal autistics are of sound mind. Upon seeing us do moves like flapping, rocking, or moaning, they assume we are unintelligent. People then proceed to talk about us as if we don’t understand what they are saying. This means we have to endure horrible untruths being said about us without being able to respond. No wonder we run off to escape elope. No one can just sit and endure that without blowing a gasket.
Sometimes people ask mom questions about me like:
“Is he low functioning?”
“Is he in regular school?”
“Will he be able to live alone someday?”
“How do you cope with his autism?”
Or best yet,
“Is he violent?”
These are all both assumptions about autism and questions I could answer myself, if asked. Sometimes mom gives the wrong answer but she doesn’t mean to. Other times I want to answer…
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I am oh so glad to see the anti-vaccination movement finally seeing some serious public blowback, and very, very sorry that it has taken a lot of sick kids to do it. And alternately thankful at writing like this (Vaccines Don’t Cause Autism, But That’s Not the Point. Stop Being Ableist.) being all over my Facebook feed, and ambivalent about some of its logic. (It is still well worth reading.)
IF vaccines caused autism, even in some tiny percentage of vaccinated children, then whether the tradeoffs were worth the risk might be an ethical discussion worth having. (In which I would still give a hell of a lot of weight to “Measles encephalitis will straight up kill you, autism won’t.”)
But it isn’t. Vaccines don’t cause autism, period.
A hypothetical situation: If there were some form of medical treatment that carried a risk of turning me non-autistic, I…
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Spread smiles 🙂
A must read!
Ariane: What should we start our day with? German, a blog post, general writing, fiction, poetry or something else?
Emma: Just start with blog post.
A: What would you like to post about this morning?
Emma: How about the topic: Knowing many things, but having no one believe you are able to understand.
Ariane: This is a great topic! Do you want me to say anything or keep quiet so you can continue?
Emma: I will continue.
For many years this was the title of my life. It was long hours bloated with mindless screams of nonsensical searing memory words that no one understood the significance of. The feeling of pleased joy when another believes, and then astounds the non believers by interacting with their knowing, is like beams of brilliant light shouting through the dreary darkness. Diving heavy waters it cannot be described, but the word coming closest is…
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When you’re not disabled, you take a lot for granted… a LOT. We shouldn’t.
One: I’m clinging to my roommate’s arm, trying to (re)learn how to walk in heels.
Two: a friend sent me a pair of shoes.
One: I wore heels, once. I was in a choir, a choir that was a Really Big Deal, and the high school girls had to wear character shoes. I got the lowest possible heel, and I was okay, mostly.
I liked how they sounded on the floor, so sometimes I wore them in college, or to DD council meetings, or when I went to Washington. I think they had maybe a half-inch heel.
I lost my character shoes in the move. Two years went by. I tore all the muscles in my left ankle, every last one, and I couldn’t go to physical therapy.
I put on a new pair of heels, and I knew, instantly that…
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