rosita runs away

In their own time and in their own way

a diary of a mom

Brooke is putting on a play with her friends this Sunday.

A play that she wrote.

Brooke, the child who entered school with no imaginary play.

The child who we were told could not – might not ever – understand the concept of symbolic play.

The one for whom language was and remains a struggle, but for whom scripts have always been second nature.

(Oh, and the one who we were told would neither have nor want friends.)

Last week, she asked to go to the store where they sell blank books. I showed her one. She asked for a package of ten. And then she got to work.

She wrote five stories.

This is one.

The one that formed the script for the play.

I give you Rosita Runs Away.

{Images are the pages of the book, with the text transcribed as it was written below each one.}

IMG_2319

Rosita Runs Away

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Jerry Seinfeld, the Broader Autism Phenotype and a Major Fail by some Parent Activists

Yes, to all of this.

Left Brain Right Brain

Entertainer Jerry Seinfeld recently stated in an interview that “I think, on a very drawn out scale, I think I’m on the spectrum”.  And from this was spawned a small faux controversy which, if anything, exposes the problems we face as a community due to a lack of understanding and unity from my own fellow autism parents.

If you wonder what I mean by that, parents of kids with the more obvious challenges presented by autism (children like mine, for example) are sometimes wont to get very defensive should autism stories be framed around anything other than the challenges faced by us as parents and by our kids.

It’s not a position I take and, in fact, it is a position that causes our communities a great deal of harm.

Let’s take a look first at what Mr. Seinfeld had to say. He was being interviewed not about autism but…

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Autistic Warriors

Awesome and lovely all at once 🙂

A Quiet Week In The House

Warrior

We have no autism warriors in this house. We do, however, have Autistic Warriors.

As the neighborhood mothers and children gather at the bus stop two houses down, two Autistic Warriors wait for their bus.

Autistic Warrior the Younger runs in circles and cries “Wooo!”

Autistic Warrior the Elder smiles. “Ahhhh, such ferocity! He fights a brave battle against the anxiety of imminent school bus arrival!”

At the craft store, Autistic Warrior the Younger dons fearsome headphones to shield himself from the horrifying banalities of cashier-induced platitudes.

He fights a more formidable battle another day. The sour faces of judgmental and prejudiced shoppers sneer. They expect silence and order as they purchase their bananas and frozen Celeste Pizzas. To defeat them, Autistic Warrior the Younger unleashes his greatest weapon:

“Hello! My name is Tyoma. Would you like to know a bit about me? I have autism, Tourette’s and OCD. I could…

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Truth and Compass: Universality and Difference Inside and Outside of Autism

Very powerful!

Ray Hemachandra @ Golden Moon Publishing

Nicholas Hemachandra at the base of Rainbow Falls, South Carolina, yesterday.My son, Nicholas Hemachandra, at Rainbow Falls, South Carolina, yesterday

There’s this meme among some autism and special-needs parents and groups, shared on social-media graphics and bumper stickers, in fundraising activities and chat sites, that we parents are, essentially, the most wonderful people in the world: self-sacrificing saints chosen by God to raise these children — that we, if not our children, are very special, indeed.

Autism parents are just like everybody else, though. There’s no reason to think we’re not a perfectly randomized selection and cross-section of parents generally and people generally.

Which isn’t to say we aren’t special and precious and divine. We are — just like everybody else.

We’re also flawed. We struggle sometimes. Some of us are kind, and some of us aren’t. Some of us are selfless, and some of us are self-absorbed. Some of us are good parents, while some of us are poor parents. Some…

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Another child

100% agree

ischemgeek

TRIGGER WARNING: This post discusses the prolicide of an Autistic child in frank detail and links to news stories covering both this case and others. The stories, as many dealing with this subject are prone to do, contain ample toxic ableism which this post dissects. The remainder of the post has been put behind a tag to protect people from accidental triggering. Proceed with caution.

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