Anti-Autism Prejudice: Media, Parents, and Damaged Children

A must read, pure and simple.

Ray Hemachandra @ Golden Moon Publishing

Nicholas HemachandraMy son, Nicholas, was featured on the cover of the major western North Carolina weekly — the Mountain Xpress — a couple of weeks ago and the cover is, without question, The Best Cover Ever. Featuring a photograph by Tim Robison and art design by Megan Kirby, it’s something to frame for Nicholas’ lifetime.

Also, and sadly this part appeals to me, if I put it in a frame I won’t read the Mountain Xpress article, in which my family and two other families are profiled, again. And Nicholas won’t be able to read it, either.

When you’re unhappy with a piece you’re featured in, it’s always disorienting. You inevitably get lots of enthusiastic response from people who care about you and who think press coverage is a kind of special honor — mixed with upset response from people who care about you and know better.

You want to…

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i do not have neurotypicalism: where person-first language fails

Love this, and love the resources that connect to the autistic bloggers! 1. Respect the choice of the PERSON, first (Irony 😉 2. If you have to SAY “person first” to SEE the person? You’ve got bigger issues that need dealing with.

a diary of a mom

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{image is a photo of a woman who is not me shouting from a rooftop, presumably because she just realized that she doesn’t have neurotypicalism either}

“So just as one can be described as Jewish or Catholic or gay without taking away from any of the other possible descriptors, they can also be described as autistic and still be thousands of other things too. The word doesn’t negate the rest of a human being, it simply acknowledges and validates the reality of that person’s experience.”

Person First, Diary, 2012

“Yet, when we say “Autistic person,” we recognize, affirm, and validate an individual’s identity as an Autistic person. We recognize the value and worth of that individual as an Autistic person — that being Autistic is not a condition absolutely irreconcilable with regarding people as inherently valuable and worth something. We affirm the individual’s potential to grow and mature, to overcome…

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inter-action

Being comfortable enough/confident enough to let people be who they are (including ourselves) is truely one of the greatest things we can do.

a diary of a mom

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{image is a photo of a teddy bear and Tigger, both in their jammies for the pajama party}

“They’re just standing there,” he said. “I can’t tell if they’re … ya know, interacting or not.”

There was a pause as he carefully gathered his words.

“I just … I didn’t know if I should be, well, doing something.”

I smiled. I promised to check on them. And then I said, “Just remember, what may not look like interaction to us might feel like interaction to them.”

He nodded. He knew. He’s just wasn’t sure. I told him that I’m never sure either, but I’d check. I went downstairs to where Brooke and her friend, Ana were playing.

Brooke had desperately wanted Ana to come for a sleepover, but she wasn’t quite ready yet. As much as she wanted it too, at a solid two years younger than Brooke and also autistic, I couldn’t…

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