this place

This post is so amazing, so moving. So much emotion. Such love, such a journey.

a diary of a mom

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Love is a sacred reserve of energy; it is like the blood of spiritual evolution. 

~ Pierre Teilhard de Chardin

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Courage is not the absence of fear, but rather the judgement that something else is more important than fear.

~Ambrose Redmoon

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From Happy Squeal, October, 2012 …

June, 2006

Brooke is three.

I don’t understand why we’re here. We’ve got to be in the wrong place. I know I asked for help, but an autism specialist? This makes no sense. My baby can talk, so it can’t be autism — right? For God sake, someone say Right.

The word took the air out of the room, sent me running for the bathroom, retching over the cold porcelain, searching for something. It was huge. It was terrifying. It couldn’t be right. But I was the one who had sounded the alarm. I was the one who knew…

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I Was One of the Scary Kids

This is such a powerful post, and something everyone who works with children, especially special needs children should read. Parents too, because we don’t KNOW what our children are feeling, special needs or not.
What’s really scary? The stigma we apply to people who need help, ESPECIALLY children.

Cracked Mirror in Shalott

Content note: ableism, stigmatization of Autistics and other PWDs, the Sandy Hook shooting

I didn’t want to write about the shootings at all. I knew a number of people (who I’ll link to throughout this post) and organizationswould be posting and writing, working to counter the inevitable stigma fail that would happen. I even was keeping to commenting on the links of people I care about, people who I know and who I want to have these sorts of discussions with. Then, it happened. I’ll leave the critiques of the post gawker promoted toothers, but I feel obligated to make a comment about some of the assumptions it is based on and promotes.

That comment starts with a declaration: I was one of those scary kids.

It’s not some great proud thing to say. It’s a truth, a truth that when I reveal it makes people…

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Free Your Mind

Free Your Mind

Children don’t stay children forever – they grow up. Autistic children don’t stay children forever – regardless of the fact that only recently has there begun to be awareness of autistic adults by the greater non-autistic population. How do we chance our perspectives in order to free our minds of fear about our children being independent, and rather look for ways to make it so?

are autism awareness days a good thing?

“Cocktail party awareness doesn’t do jack for my kid…Real awareness is about people. It’s about understanding how autistic people experience the world. It’s learning what it feels like to live inside a brain that is wired differently.” – so much yes to this.

a diary of a mom

Elmo

{Image is a photo of Elmo and Maria talking to a firefighter from Elmo Visits the Firehouse}

Last week, a reader had a question. I tend to try to answer questions quickly and move on, but this one didn’t lend itself to either a quick answer or to moving on. This was what she asked.

My question to you is how do you feel about Autism Awareness Day at school? We live in a tiny, tiny town where everyone knows everyone. The teachers know my son, they know who he is and he is accepted by his peers for the most part. I am sure people know my son is autistic, but I don’t find it necessary to have an Autism Awareness Day at the school because there are maybe a handful of students in the school who are on the spectrum and they (the teachers and administration) are calling…

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Regular Lives for Families with Children with Disabilities

Regular Lives for Families with Children with Disabilities

I couldn’t love this more!

“A medical diagnosis is NOT the defining characteristic of a person.”

Medical facts are important and necessary in order to get the best care possible. BUT – making PREDICTIONS about what a person will accomplish in their lives when that person is a CHILD, is irresponsible. NO one could have predicted where Temple Grandin – who didn’t speak till she was FOUR YEARS OLD – would be today looking at her when she was 3.

Get your child what they need to be their best selves, but at the same time, let your child be a child.